I just wanted to say “Thank You” to the parents that have reached out to me and Simmi. I am so inspired by you all and I don’t feel so alone in caring for her now. Dom and I are always searching for answers and trying to connect with other parents that could give good suggestions on how to raise the quality of her life, and I’m so grateful to those who have taken the time to make that possible! I wanted to first say thank you to the moms on the CVI message board, because the strides that I have made with Simone are amazing. I always keep your suggestions in mind when we do things each day and your wisdom and knowledge has helped us to “see things” from her perspective. Next I’d like to thank all the parents from Apaxia-Kids listserv…I am truly overwhelmed by the support you have all given! It is such a relief to talk to parents who understand what its like to have a child with speech and sensory issues. I really didn’t expect many parents to reach out as they did, and I just smiled reading all your stories about your children and how you made it through. It is always encouraging to hear success stories and a great comfort to know that what Simmi is going through is not unique only to her.
All I can say is Thank You, Thank You, Thank You!
Here is a video of one of Simmi’s speech therapy sessions. The speech therapist only comes every other week, and from what I’ve heard from other parents, their children are getting speech therapy a few times per week. I think we need to consider increasing her therapy sessions.
Tags: Apaxia Kids, CVI, parent support
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