Simmi truly is the sweetest thing in the world. As I sat with her today, we watched Alice in Wonderland and I couldn’t help but tear up as she started acting out a part of the movie. Alice was in the garden and the flowers were singing to her. Simone bursts out in song, waving [...]
I just wanted to say “Thank You” to the parents that have reached out to me and Simmi. I am so inspired by you all and I don’t feel so alone in caring for her now. Dom and I are always searching for answers and trying to connect with other parents that could give good [...]
As we discover each day new things that help Simmi and hinder her, I have started to videotape her more and more. We purchased a few toys from Good Will that we thought she would enjoy. One was a light up stacker toy that made music, and the other was a musical guitar without lights. [...]
Continue reading about Learning What Confuses and Annoys Simone
Without jinxing the rest of the day, I must say that the last few days have been going exceptionally well. I am really proud of her. It started on Monday morning when it was raining out. The sun wasn’t out and her curtain was covering her window, making the room the lowest daylight so far. [...]
As I read more about Cortical Visual Impairment I’m finding so many awesome things to sooth my little savage beast! Children with CVI can become very overwhelmed with lots of stimuli. If the noise level is too high, the light is too bright or low, if there is a lot of action going on in [...]
Ok, the title of this entry is “Progress and Chipped Teeth.” What the heck does that mean? Well, we are making progress with Simmi in the speech department, slowly and surely. Now that I wear lipstick during the day (I still forget sometimes to put it on), she is far more attentive to my face [...]
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