Today Simone’s speech therapist came and finally gave a diagnosis of Apraxia of Speech. In September 08′ a neuro-developmental pediatrician had given Simmi a partial diagnosis of “speech disorder of unknown origins.” It can take a long time for a child to be diagnosed with a speech disorder, and after almost a year of working [...]
I don’t usually post more than once in a day, but something had been irking all day and I couldn’t figure it out. I felt like I was forgetting something, and then I remembered! On December 22, 2000 little Joey Bergsma lost his battle with Retinoblastoma. I’ve been in contact with Pam Bergsma who is [...]
I just wanted to say “Thank You” to the parents that have reached out to me and Simmi. I am so inspired by you all and I don’t feel so alone in caring for her now. Dom and I are always searching for answers and trying to connect with other parents that could give good [...]
It has been a long time since I’ve written about Simmi and I apologize for not keeping up with my blog. I’ve had my own little mini health crisis as well as writer’s block which has made me completely unmotivated to even attempt to write. I’ll only be giving a brief synopsis of the different [...]
As we discover each day new things that help Simmi and hinder her, I have started to videotape her more and more. We purchased a few toys from Good Will that we thought she would enjoy. One was a light up stacker toy that made music, and the other was a musical guitar without lights. [...]
Continue reading about Learning What Confuses and Annoys Simone
Without jinxing the rest of the day, I must say that the last few days have been going exceptionally well. I am really proud of her. It started on Monday morning when it was raining out. The sun wasn’t out and her curtain was covering her window, making the room the lowest daylight so far. [...]
I don’t have a lot of good news to report about Simone, but I would like to tell you all about some recent developments concerning flooring. As you can see in the photo on the left as well as in some of the videos that we have taken of Simmi, we have been walking and [...]
Although Simmi has stopped the bouts of screaming she was doing, she is still being very needy and clingy. She is still losing her balance but is learning to compensate I think by her new way of walking. I’d like to get really good footage of her on a good day, because on a good [...]
Simmi is continuing to deteriorate this week. She developed a fever two weeks ago. It is really unexplained why she even got the fever in the first place, because she doesn’t have any symptoms of being ill. We thought that maybe she aspirated some water she drank because of her reflux. When we got home [...]
I was able to video Simmi walking on June 20th and that was the last time I was able to do anything. I’ve attempted to get video of her walking since then, but she mostly prefers to be sitting down or sitting on us. She does walk still, but prefers to sit. We’re going to [...]
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